Links to Online Resources
Display # 
# Web Link
21 The Fathers Network
"Our mission is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities."
22 The Rehabilitation Research and Training Center on Aging with Developmental Disabilities (RRTCADD)
A national resource for researchers, planners, providers, self-advocates, families and students in the field of aging and developmental disabilities retardation.
23 Institute for Community Inclusion
Offers training, clinical, evaluative and employment services, conducts research and provides technical assistance to promote inclusion of people with disabilities in school, work, and play.
24 National Institute on Disability and Rehabilitation Research (NIDRR)
Conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment, and independent living of disabled individuals of all ages.
25 National Rehabilitation Information Center
Collects and disseminates the results of federally funded research projects.
26 Disability Statistics Center
Produces and disseminates statistical information on disability and the status of people with disabilities in American Society. Establishes and monitors indicators of how conditions are changing over time to meet their health, housing, economic and social needs.
27 InfoUse
Uses the power of information, technology, and participatory research to improve community equity, access and outcomes.
28 The Society for Disability Studies
A nonprofit scientific and educational organization established to promote interdisciplinary research on humanistic and social scientific aspects of disability and chronic illness.
29 Center for Universal Design
National research, information, and technical assistance center that evaluates, develops, and promotes universal design in housing, public and commercial facilities, and related products.
30 National Spinal Cord Injury Association
Interests are in improving care, producing results in research, and addressing everyday living issues that confront all people who use wheelchairs.
31 Little People of America
Nonprofit organization that provides support and information to people of short stature and their families.
32 National Organization of Fetal Alcohol Syndrome
Nonprofit organization dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and improving the quality of life for those individuals and families affected.
33 National Association for Down Syndrome (NADS)
Provides critical counseling and support for parents of newly diagnosed infants with Down syndrome as well as advocacy, referral and information services.
34 National Down Syndrome Society (NDSS)
Increases public awareness about Down syndrome and discover its underlying causes through research, education and advocacy.
35 National Parent Information Network
Provides access to research-based information about the process of parenting, and about family involvement in education.
36 National Registry of Rehabilitation Suppliers
Ensures the provision of high quality Rehabilitation Technology and related services to people with disabilities.
37 Epilepsy Foundation of America
Works for children and adults affected by seizures through research, education, advocacy and service.
38 Tuberous Sclerosis Alliance (previously the National Tuberous Sclerosis Association)
Only national voluntary health organization for the genetic disorder known as tuberous sclerosis complex (TSC).
39 Prader-Willi Syndrome Association
Provides parents and professionals a national and international network of information, support services, and research endeavors to expressly meet the needs of affected children and adults and their families.
Focuses on promoting services in the community instead of warehousing people with disabilities in institutions and nursing homes. Attendant services are the cornerstone to community based services for people with severe disabilities.
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