Links to Online Resources
Display # 
# Web Link
1 March of Dimes
To improve the health of babies by preventing defects and infant mortality.
2 Tuberous Sclerosis Alliance (previously the National Tuberous Sclerosis Association)
Only national voluntary health organization for the genetic disorder known as tuberous sclerosis complex (TSC).
3 FRAXA Research Foundation (Fragile X Syndrome)
Supports scientific research aimed at finding a treatment and a cure for fragile X syndrome.
4 Prader-Willi Syndrome Association
Provides parents and professionals a national and international network of information, support services, and research endeavors to expressly meet the needs of affected children and adults and their families.
5 The National Fragile X Foundation
Unites the fragile X community to
enrich lives through educational and emotional support, promotes public and professional awareness, and advances research toward improved treatments and a cure for fragile X syndrome.
6 The Genetic Alliance
Leading support, education and advocacy organization for all those living with genetic conditions.
7 Genetic and Rare Conditions Site
Lay advocacy and support groups, information on genetic conditions / birth defects for professionals, educators, and individuals.
8 Chromosome 22 Central, Inc.-- web page of genetic disorders.
Websites of various genetic disorders.
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